WORLDSymposium 2026 The Patient Voice

The Patient Voice 2026 Why Does Publish or Perish Apply to Patient Advocate Groups? Course Director: Jeanine R. Jarnes, PharmD, MSc, BCOP, BCPSMonday, February 2, 202615:00 – 16:00 PST1.00 Hour CE Session* Overview: Rare diseases in general, and lysosomal diseases in specific, are constantly competing against common diseases for attention, resources, and funding, in every country […]

WORLDSymposium 2025 The Patient Voice

The Patient Voice 2025 was an 1-hour CE-session, held on Monday, Feb. 3, 2025. More details.

WORLDSymposium 2024 The Patient Voice: Is Anyone Listening?

This new session: The Patient Voice: Is Anyone Listening? explored measures that industry and other researchers have taken to better understand what is most important to patients in terms of clinical trial endpoints, unmet needs, and goals of therapies. More details.