John F. Crowley to receive the 2020 Roscoe O. Brady Award for Innovation and Accomplishment
John F. Crowley is the Chairman and CEO of Amicus Therapeutics, a global biotechnology company focusing on developing treatments for rare genetic diseases. John has been Amicus CEO since 2005 and has overseen the company’s growth from a four person start-up to one with operations in more than 30 countries, with 550+ employees and a market value of nearly $3 billion. John’s involvement with biotechnology stems from the 1998 diagnosis of two of his children with Pompe disease—a severe and often fatal neuromuscular disorder. In his drive to find a cure for them, he left his position at Bristol-Myers Squibb and became an entrepreneur as the Co-founder, President and CEO of Novazyme Pharmaceuticals, a biotech start-up conducting research on a new experimental treatment for Pompe disease (which he credits as ultimately saving his children’s lives). In 2001, Novazyme was acquired by Genzyme Corporation and John continued to play a lead role in the development of a drug for Pompe disease as Senior Vice President, Genzyme Therapeutics.
John and his family have been profiled on the front page of The Wall Street Journal and are the subjects of a book by Pulitzer prize-winning journalist Geeta Anand, “The Cure: How a Father Raised $100 Million-And Bucked the Medical Establishment-In a Quest to Save His Children.” The major motion picture, Extraordinary Measures, starring Brendan Fraser and Harrison Ford, is inspired by the Crowley family journey. John is the author of a personal memoir: Chasing Miracles: The Crowley Family Journey of Strength, Hope, and Joy.
John served as a commissioned intelligence officer in the U.S. Navy Reserve from 2005-2016, assigned to the United States Special Operations Command and is a veteran of the global war on terrorism, with service in Afghanistan. He graduated with a B.S. in Foreign Service from Georgetown University, and earned a J.D. from the University of Notre Dame Law School and an M.B.A. from Harvard. The Crowley family was the recipient of the 2011 Family Exemplar Award from the University of Notre Dame. He is also a member of the University Council on Science & Technology at Notre Dame. John served as the National Chairman of the Make-A-Wish Foundation of America (2014-2016) and is a founding Board member of the Global Genes Project. John is a Henry Crown Fellow at the Aspen Institute.
Mr. Crowley will receive the 2020 WORLDSymposium Roscoe O. Brady Award for Innovation and Accomplishment on Tuesday, February 11, 2020 at 7:30 AM following which he will give his address The Moral Obligation to Ensure Access to Medicines for All Patients in Need.
About the WORLDSymposium™ Roscoe O. Brady Award for Innovation and Accomplishment
Each year, WORLDSymposium recognizes one individual for innovation and accomplishment in the field of lysosomal disease research and therapy. This award has been renamed the Roscoe O. Brady Award for Innovation and Accomplishment to honor one of the early pioneers in lysosomal research, Roscoe O. Brady, MD, who was a beloved mentor to many currently working in the field. Dr. Brady passed away in 2016, and WORLDSymposium has renamed the annual Innovation and Accomplishment Award to honor his achievements.
The award will be presented at the WORLDSymposium 2020 opening session on Tuesday, February 11, 2020 at 7:30 AM.
The award is presented annually to recognize substantial contributions to lysosomal disease research and therapy. The recipient is presented with an engraved award and is recognized at the WORLDSymposium scientific meeting held annually in February. The award winner is also invited to present a 30-minute address as the opening speaker at WORLDSymposium, and an announcement of the award recipient is included in the February special lysosomes issue of Molecular Genetics and Metabolism. (This award is given on a yearly basis, but can be omitted in any given year at the discretion of the Planning Committee.) Nominations are solicited annually from members of the lysosomal disease community, planning committee members and attendees of WORLDSymposium.
Past Award Recipients:
2004 William Krivit, MD, PhD
2006 Henri A. Termeer
2008 Roscoe O. Brady, MD
2009 Elizabeth F. Neufeld, PhD
2010 William S. Sly, MD
2011 Steven U. Walkley, PhD
2012 John J. Hopwood, PhD
2013 Robert J. Desnick, PhD, MD
2014 Gregory A. Grabowski, MD
2015 Stephen C. Groft, PharmD
2016 Emil D. Kakkis, MD, PhD
2017 Konrad Sandhoff, PhD
2018 Mark E. Haskins, VMD, PhD
2019 Danilo A. Tagle, PhD, MS