The Patient Voice: Is Anyone Listening?

Course Director: Jeanine R. Jarnes, PharmD, MSc, BCOP, BCPS
Sunday, February 4, 2024
4:00 – 6:00 PM

WORLDSymposium is presenting an exciting new program to be held on Sunday, February 4, 2024 from 4:00 – 6:00 PM just prior to the 20th Annual WORLDSymposium opening event, “Be the Catalyst“. This new session: The Patient Voice: Is Anyone Listening? will explore measures that industry and other researchers have taken to better understand what is most important to patients in terms of clinical trial endpoints, unmet needs, and goals of therapies. 

The goal of this new 2-hour non-CE session is to enhance awareness of the importance of listening to what therapy outcomes and unmet needs are most important to patients and their families, and incorporating those outcomes into clinical trial design and post-trial marketing follow-up. This session will be recorded and offered as part of the On Demand program through March 14, 2024.

Program Chair:
Jeanine R. Jarnes, PharmD, BCOP, BCPS, MSc
Assistant Professor, Department of Pediatrics
Pharmacotherapy for Inherited Metabolic Diseases
Advanced Therapies Department
College of Pharmacy, Experimental and Clinical Pharmacology
University of Minnesota
Minneapolis, MN, USA

Faculty and Agenda coming soon.